EEG

Kid's heading into the hospital for her 2 year followup EEG this morning. If all goes well and her results are "normal" than we will begin weaning her from her anti-seizure medication. That will take about 6 weeks. During that time and the following 6 months she will be most likely to have a seizure if she is still epileptic... since the weaning process itself actually makes the brain more susceptible to seizure activity. If she does have another seizure she will return to her medication, and we will at least know that her medication had, in fact, been working all these years. If she remains seizure free we will still have her emergency medication on hand because, unfortunately, no news is just no news... it isn't a definitive answer. She may never have another seizure (as is the case 70% of the time) or she may have one tomorrow, or next month, or 15 years down the road (as is the case 30% of the time). The brain is a tricky tricky beast. And as anyone out there who has something that is already rare and unlikely (2-3%), and then has the rarest form within that bunch, knows, numbers bring you very little comfort.


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UPDATE:

Thank you for all your well wishes and prayers. We really appreciate them!!!

Well we're back. We had one of those *nice* techs who actually confirmed that the test was normal. Kid was in no mood for this test since we had to follow sleep deprivation protocol... which also meant I was sleep deprived (beyond the normal day to day level) and was having a hard time holding Kid together. Thank God I had some of her birthday gifts stashed in the trunk to bust out as bribes!

We are mighty,mighty, tired ... maybe I'll get them to nap?!