Monday, October 20, 2008

EEG

Kid's heading into the hospital for her 2 year followup EEG this morning. If all goes well and her results are "normal" than we will begin weaning her from her anti-seizure medication. That will take about 6 weeks. During that time and the following 6 months she will be most likely to have a seizure if she is still epileptic... since the weaning process itself actually makes the brain more susceptible to seizure activity. If she does have another seizure she will return to her medication, and we will at least know that her medication had, in fact, been working all these years. If she remains seizure free we will still have her emergency medication on hand because, unfortunately, no news is just no news... it isn't a definitive answer. She may never have another seizure (as is the case 70% of the time) or she may have one tomorrow, or next month, or 15 years down the road (as is the case 30% of the time). The brain is a tricky tricky beast. And as anyone out there who has something that is already rare and unlikely (2-3%), and then has the rarest form within that bunch, knows, numbers bring you very little comfort.


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UPDATE:

Thank you for all your well wishes and prayers. We really appreciate them!!!

Well we're back. We had one of those *nice* techs who actually confirmed that the test was normal. Kid was in no mood for this test since we had to follow sleep deprivation protocol... which also meant I was sleep deprived (beyond the normal day to day level) and was having a hard time holding Kid together. Thank God I had some of her birthday gifts stashed in the trunk to bust out as bribes!

We are mighty,mighty, tired ... maybe I'll get them to nap?!

13 comments:

Renee said...

I will be thinking of you today...good luck w/ everything today Kid!

Amy said...

Okay--I' thinking, praying, crossing my fingers, and sending good vibes for Kid.
Reading the posts about her struggle with epilepsy always makes me weepy. She's so brave...and so are you.
Lots of luck, Mrs F!

angie said...

You know I will be dying to hear the results. I know this is very stressful for your whole family. Hang in there. I know it will be a long ride.

Julie said...

Thinking of you all today. Take care.

Haley said...

Good luck today -- will be thinking of you guys and hoping that Kid's in that 70%.

Claire said...

I grew up with a close family member diagnosed with a form of epilepsy - I will be praying for Kid and all of you. God's peace on you and yours.

kenady said...

So glad to hear that Kid is normal:) Get some rest... you both sound like you need it:)

Mary Poppins said...

glad to know the tech was on your side so you don't have to be wondering for the next week. i'm also glad things look good at this point and i will continue to pray that her situation keeps improving from here on out.

Mrs Furious said...

Thank you everyone.
I really do greatly appreciate having so many thoughtful, considerate, blogging friends. It has absolutely changed my life... for the better.


Oh God... Kid wants me to pull out her tooth... pray for me!!! ;)

SK and Family said...

I am glad everything went well!

Nutmeg said...

YAY Kid and Mrs. F

I hope today was handleable

Missives From Suburbia said...

I'm glad it went well, and I hope Kid is seizure-free forever.

Any suggestions on how to bribe a two-year-old who will be in a similarly grumpy state for his next EEG?

Mrs Furious said...

Deb,
We hadn't done a sleep deprived one before... that sucked. Kid was fine with her previous ones. But we were at a new hospital and the swab of goo they rub on each spot for the "button" was hurting her it had some kind of abrasive in it.
A My Little Pony worked for us... and a Happy Meal ;)

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